Resources for Journalists

“When Racial Bias Hides in Plain Sight”
Primer for journalists: Issue overview, glossary, impact stories, players in the field, reading list

Association of Health Care Journalists Health Beat: Algorithms & Health Disparities
Background, angles, and tips for covering race in algorithms and guidelines

Encoding Equity News & Publications page
Regularly updated list of research publications and news coverage

Rethinking Race & Ethnicity in Biomedical Research
Groundbreaking National Academies report (October 2024) that sets new standards for considering the role of race in research

“Hidden in Plain Sight: Reconsidering the Use of Race in Clinical Algorithms”
Seminal New England Journal of Medicine article that raised national awareness of this issue

Fact Vs. Fiction: Clinical Decision Support Tools and the (Mis) Use of Race
House Ways & Means Committee Report

Clinical Algorithms With Race and Ethnicity
A useful database that catalogs risk calculators that use: race and ethnicity as predictors; laboratory test results with reference ranges that differ based on race and ethnicity; therapy recommendations based on race and ethnicity; medications with race- and ethnicity-based initiation and monitoring guidelines; and medical devices with differential racial and ethnic performances.

Citing Harms, Momentum Grows to Remove Race From Clinical Algorithms
State-of-the-field overview in JAMA Network by Bridget M. Kuehn

A Biased Test Kept Thousands of Black People From Getting a Kidney Transplant. It’s Finally Changing.
AP story by Lauran Neergaard

Embedded Bias
Seven-part STAT series by Usha Lee McFarling & Katie Palmer covering many facets of the race in algorithms issue

When Machines Prescribe
A 2025 PBS/NOVA documentary investigating medical algorithms in which the patient’s race drives decisions

Race-Based Diagnosis
New England Journal of Medicine “Intention to Treat” podcast hosted by Rachel Gotbaum
Episode 1 Episode 2 Episode 3

The Race Equation
New England Journal of Medicine “Intention to Treat” podcast, hosted by Rachel Gotbaum, Season 2.

To Tackle Race in Clinical Guidelines, Researchers Seek Alternatives to Federal Dollars
STAT story by Katie Palmer

“Unwinding Race: Better Research for Better Health”
Brief issue overview video from the Encoding Equity Alliance

Toward a Healthier Future: Building a Science of Health Beyond Biomedical Discovery
NEJM Catalyst Supplement focused on Health Solutions Science

Accelerating Gains in Health Through Research: A Funder Roadmap
Practical guidance for funders and partners to advance health solutions science

Claiming to Fight Waste, Trump Administration Slashes Potentially Cost-Saving Research
STAT story by Eric Boodman

“Nobody Answers:” The Unraveling of a Patient Care Research Agency
Roll Call story by Jessie Hellmann

Supporters Push to Revive Moribund Agency Studying Patient Care
Science story by Jocelyn Kaiser